The last week has been a nightmare any parent should never have to go through. My friends son did not make it he passed last Saturday. He physcially was doing ok but on Friday they did brain function test and he was brain dead. VERY SAD! The family is holding up way better than I would be. As I writting this i just a got text from her that said " We ordered a beautiful headstone!! Thanks for being there and you can"t live your life in fear of Cadence's disease. Just enjoy her don't fear the disease god wouldn't want you to be so stressed living day to day scared it's out of control as I found out." My heart aches for her.
Since this has happened to her, I am now more than ever worry more about BG. I know we have them under control and she is doing good, but us T1 mamma's know this could change in a blink of eye.
Well just wanted to give an update with her son since i posted last week about him. Thanks to all your prayers keep them coming they will need them in the next upcoming weeks and months.
I'm sorry to hear about this. It sounds like he is in a better place now. I know it can be scary to hear about passings, but we can't always know what's best and meant to be. All we can do is try our very best!
ReplyDeleteOh my goodness, I am so sorry to hear about this.
ReplyDeleteI am a single Mum of 2 kids with T1D, and I also run an online support group for parents of Australian kids with T1D.
Whenever we learn of tragedies in our T1D community each of us hold our children a little tighter and sleep (what little there is) becomes that much more elusive.
Here in Australia a 9 year old little boy in Queensland passed in similar circumstances. He was laid to rest late last week.
Many of our parents become very upset and do not like to have to face this terrible side of this disease however keeping our heads in the sand about this does not help anyone at all.
I also have a Blog which I would love for some of you to visit to get an Aussie perspective on life as a Mum of kids with T1D. We speak a bit of a different language in terms of BGL measurements so that may freak you out a little - but you just take the US measurements (mg/dl) and divide them by 18 to get our measurements (mmol/L). Our "normal" range for BGL's is 4.0-7.5mmol/L - with our target being 6.0mmol/L - a hypo is 3.9 or under and we check for ketones anywhere above about 14.0mmol/L.
Oh - my blog is http://2kids2pets2pumps.blogspot.com
Annamarie x x x