We Don't Have It So Bad

As I was wondering what I should blog about this evening. Nothing came to mind except we don't have it so bad after all. Even though we as D parents think sometimes how could it get worse. We are either to high or low, ketones, snacks and juice every 3 hrs in the middle of the night. We wish we could sleep more than 3-4 hrs. Then there are night OH MY GOODNESS I slept through my alarm. You take off running to the bedroom to check BG and to your surprise your child is sleeping and is just fine. God has taken control for a few hours so we can sleep. This brings me to why I am posting tonight.

As I signed onto Facebook yesterday I read a girl I had gone to high school with had passed away unexpectedly at age 35 leaving two little boys here on earth without a mommy to get kiss away the boo's boo's or watch them play ball, graduate, go to college, get married and so on. Then  I few weeks ago I stumbled across a family who's daughter is fighting Neuroblastoma cancer stage 5. I do not know this family at all but have several friends who do. Check out her CaringBridge site her mom has set up.   http://www.caringbridge.org/visit/isabellasantos/mystory  

So just when we all think HOW BAD IS TODAY? We still have our babies with us and are doing everything we can to help find a cure. With this being said I will leave with a picture of Sweet and Sassy playing softball and pitching and enjoying life to the fullest no matter what D throws at her she throws it right back on the field.

Feeling Numb

     Well here it is been three months since I blogged. What have we been doing?!? I can't really remember all the details but we have had highs, lows, been on vacation, birthday parties you name it. Oh and Sweet and Sassy has a broken hand now. Through all this I have often sat and wanted to write but just have not. After a lot of thinking I may know now.
      
      I love reading everyone's blogs on how they are doing with D but for me to write a page is just to painful at times. I so wish our lives were normal...but what is normal? I forget. This time of year brings so many emotions that I almost feel numb, now days. All the highs and on her birthday reading off the PDM for nearly 4 hrs felt has if I was in bad dream and couldn't wake up. When she looked at me and said "Mom I am scared will I be okay?" Holding back the tears I say " Yes you will be fine." Not knowing what was going to happen to her that evening. Needless to say 22units of insulin in 4 hrs we got a reading of 523. Thank- you Jesus for keeping my little one safe tonight.

     May 17, 2010 was the start of our 21 days and 3 trips to the Dr to finally get some answers...we have D. The dreaded word I have come to learn so much about. Sometimes I just feel like the high and lows have no affect on me anymore its just a number and we know what to do. No more of the worries I had in the beginning. Did I count carbs right did I change ratio's right. Don't get me wrong I still worry everyday just that I feel numb to the numbers and that there is no right or wrong with diabetes. Everyday is different. The lack of sleep, counting carbs, weighing and measuring are just are normals now. Life before diabetes is just a blur and honestly I do not remember life before.

      Sweet and Sassy is becoming very good at learning how to care for herself, pod changes,weighing, measuring and carb counting.. I put a lot of responsibility on her because I can not be with her 24 hrs a day. So with our endo appt tomorrow at noon I am little worried to see her A1c because we have been all of the place with numbers the past three wks. I leave the blog tonight still feeling numb to all that diabetes has given to us over the last 2 yrs.
      

I am back

Well it has been a little over 2mths since I have wrote on this blog. Mainly because I am so busy. Here you go an update on the Omnipod:)

We have been podding for 3mths and had our 3mth check up with endo today, drum roll...A1c was 7.1!!!! Awesome for us, I was a little worried because she has been all over the place lately. We are still trying to figured out some basal and IC ratio's but over all I am very proud of how we have done so far.

Sweet and Sassy's handles it all very well. She can even do a pod change by herself with no help. I am getting braver and have let her spend the night away from twice. The third time will be Sunday she is staying with her cousin.

Hope all my blogging friends are doing well, I promise to update more often.

What were we waiting for

So we have been pumping with the Omnipod for one month tomorrow, so far so good no big issues. We love it, as I sit back and think about why I waited so long to get started on the pump? I really think it was just I had the injections down I knew when she would go HIGH or LOW with what activity.

Pod changes have went well every three days we have not had one fall off or be uncomfortable...I am patting myself on my back because when were on saline the first week I put one her arm and it was EXTREMELY painful for her. Sweet and Sassy cried for almost two hours that day. I felt so bad for her and thought is this going to work for us. She was so afraid of and said " I just want to go back on shots!" I encouraged her to keep trying it out. Trying to explain this too a crying 8 year old who is very strong willed was quite difficult but all in all she agreed.

One of our first days on the pump she said " I do not even feel like I have diabetes anymore." This brought tears to my eyes. I am glad she feels that why now me it took me a few days, seeing the pod attached to her was a constant reminder to me that she had this awful disease. It does not bother me at all anymore.

We have had awesome BG only a couple high's but this week are struggling with low's in the morning after breakfast as in 40 yes I said 40 to low for me.

A big thanks goes out to Nicole Stupp when ever I had question no matter the time of day or night she was always there for me.

With all of this being said Sweet and Sassy is preparing for our next cheer competition on Saturday

24 Hours and counting on the pump

A very long time awaiting but we did it and so far we love it. As I did not think it was going to bother me very much but as we ate our first meal without and injection I become overwhelmed with emotion I started crying and could not stop. I am sure everyone in the place was like what is wrong with the mom. I have been an emotional mess since then. I think it just brought back so many memories of Dx day.


So here we are just over 24 hrs and counting and we have had great numbers and only one high but no ketones. Keeping my fingers crossed that we continue with all the good reports.

Her first meal without an injection!

Big Day

As it never occurred to me when were setting up our start of the Omni-pod it was diabetes awareness month what better month to start pumping! Today is the day we will began pumping of course with saline the first week then insulin. I am a nervous wreck I will do something wrong with the pump. Just has I felt the day we left the hospital when Sweet and Sassy. I know we will be okay because I have great support group of other D mamma's that I have met over the past few months. Well time to get ready for our big day.

Get better fast

I am really upset today, on Saturday I let Sweet and Sassy play outside all day with

Snuggled on the couch with Braxton with high blood sugars that make her feel cruddy!!!!

the neighbor kids. She had on sweatshirt and jeans and tennis shoes...versus the neighbor girl who had no shoes and tank top with carpi pants it was in the 50's but hey I am not her mom. So who wakes up yesterday with a nasty barking cough yes that would be my daughter. I started breathing treatments immediately on her as I do not want this to get out of control...which with the breathing treatments = high blood sugars in 400's. I just get so made at this stupid disease the least little thing they do affects their sugar level. Needless to say we off to the Dr today when the little girl across the street is at school and is not sick...not that I would want her sick too. We can not be sick we are getting our Omi-pod on Thursday and we have our first cheer competition on Saturday